Tricha Shivas

Chief of Staff & Strategy Foundation for Sarcoidosis Research

Tricha Shivas joined the Foundation for Sarcoidosis Research (FSR) in December of 2020 as the Chief of Staff and Strategy. Tricha has 20 years of non-profit leadership experience dedicated to improving the lives of those with complex chronic illness and rare diseases. Throughout her career, she has built comprehensive patient engagement and awareness programming, developed robust diversity, inclusion, and equity programming, worked with the NIH, FDA, academic researchers, and industry to expand therapeutic pipelines and to increase patient centricity in drug development. Tricha has played a pivotal role in FSR’s Ignore No More Campaign focused on awareness and increased clinical trial diversity.

Tricha received her bachelors in American Studies from Albright College and her Masters of Bioethics from University of Pennsylvania. She currently serves on Drexel University’s Health Administration Department Advisory Council is on Global Skin’s Rare Disease Steering Committee and past co-chair the NIAMS Coalition.

Seminars

Wednesday 18th November 2026
Normalizing Clinical Trial Conversations Earlier in the Patient Journey to Increase Referrals & Patient Participation
4:00 pm
  • Identify why patients often hear about clinical trials too late and the impact this has on recruitment and diversity
  • Learn how to integrate clinical trial education into routine care through physician engagement, patient advocacy, and community outreach
  • Hear a case study on collaborating with government to improve access to family medical leave, reducing practical barriers to clinical trial participation
Tricha Shivas, Foundation for Sarcoidosis Research at Targeted Patient Recruitment Summit