Tara Hastings
Global Patient Engagement Lead, Rare Diseases, Rare Blood & Genomic Medicines Sanofi
Seminars
Wednesday 18th November 2026
Recruitment Strategies for Rare Disease & Niche Patient Populations: Building Patient-Centered Engagement to Improve Feasibility & Enrollment Success
2:15 pm
- Partner with patient advocacy groups early to understand lived experience, shape protocol design, and develop recruitment and retention strategies that reflect community needs
- Balance scientific objectives with the patient voice to design trials that remain operationally feasible while reducing burden and improving long-term participation
- Explore real-world examples of creative patient engagement, from improving understanding of gene therapies to collaborating with advocacy organizations to address practical barriers beyond the reach of sponsors alone
